People with Down syndrome and their families are best placed to provide parents with a diagnosis with support, accurate information and knowledge based in direct lived experience.
If you are considering screening, or face a diagnosis, we would love to hear from you. Please contact one of our regional representatives.
Parents who are receiving prenatal health care have entered into a relationship of trust with a midwife or other medical professional for nurturance and support of their wanted pregnancy. We believe that nurturance, health care and support should remain the focus if there is an unexpected diagnosis. When faced with a diagnosis, this is the first moment we are called to be true parents and provide unconditional love and support to our children. We believe that the inherent dignity and value of that wanted child does not change as a result of a diagnosis. We are here to provide compassion, love and support in these situations.
A message to future mums by our international coalition led by CoorDown in Italy.
The following websites provide excellent information and support around the reality of life with Down Syndrome.