Genetic Screening

Louisiana to prohibit termination option in prenatal resources

In a first for any US State, Louisiana is poised to pass a new law that prohibits the presentation of pregnancy termination as an option in written information provided to parents when receiving a prenatal diagnosis. Currently in the US, there is a national model that will lead States
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What a performance – bloods and ballet!

Wyn Evans of “Musings of a Proud Dad : beating Downs barriers” shares an article that was recently published in the Cardiff Times in Wales. He shares his love and joy of being a Dad and the importance of our mission. A Wednesday morning, 0930 hours, and The Girl is not yet
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{Unexpected}: Stories of a Down syndrome diagnosis

  A guest post by Jen Jacob, compiler of the book {Unexpected} and Vice-President of the Down Syndrome Diagnosis Network. I thought I knew my life’s path many years ago. Become a teacher. Get married. Have a family. Live a good life. Not anything too crazy. My childhood dreams of
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Genetic expert Diana Bianchi misrepresents new eugenic test for Down syndrome

amnio nz
    This week the Harvard Gazette published an article on the “new test for Down syndrome”. It contained the usual offensive language about our community. It contains the usual misleading information about screening. It introduces a new Trojan horse of a “future treatment” t
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Antenatal screening, disability rights and the CRPD

Disability-selective antenatal screening programmes have been attracting the attention of disability advocates worldwide. And rightly so, as we witness on a global scale programmes that target the Down syndrome community for birth prevention. These programmes reinforce attitudes of di
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PRESS RELEASE: Otago University Bioethics Director must resign following discriminatory paper on Down syndrome

Otago University Bioethics Director must resign following discriminatory paper on Down syndrome Saving Downs demands the resignation of Otago University’s Director of Bioethics following the publishing last week of a highly offensive and discriminatory paper about prenatal testing for
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PRESS RELEASE: Important win secured with revised screening guidelines

Important win secured with revised screening guidelines Saving Downs has secured a number of important and welcome changes to the national screening programme for Down syndrome. Last week new guidelines were formally issued by the National Screening Unit. These were revised following
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Saving Downs secures important win with revised screening guidelines

Mike Sullivan bio
Last week new guidelines for screening for Down syndrome in New Zealand were formally issued by the National Screening Unit. These consist of a leaflet for pregnant women and their partners and detailed guidelines for Health Practitioners. These have both been revised following the up
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An open letter to BPAS chief Ann Furedi: Disability is not “tragic”, UK inquiry is welcome

This week a Parliamentary Inquiry into abortion on the grounds of disability was launched in the UK. This is a major opportunity for social justice for our community. We applaud Fiona Bruce MP, the Inquiry Chair, for this most welcome and important initiative to stop discrimination ag
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An end to Down syndrome in New Zealand?

This blog has been crossed posted from MercatorNet.com and has been reproduced with their kind permission. As someone who now has an 8 week old baby, I have recently started reading a range of parenting magazines.  It is amazing how supported you can feel by people on a page who appea
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