Tag

Genetic Screening

“Down syndrome has to disappear from society”, according to Hans Galjaard

By Renate Lindeman “Down syndrome has to disappear from society,” according to Hans Galjaard, in a recent interview about the new genetic blood-screen NIPT. In his “opinion” he does not take into account the fact that people with Down syndrome judge life better than you and I. Now, th
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Myth 3. Genetic screening is not about money, but our well-being.

Saving Down syndrome is proud to bring you a series of articles debunking the 4 most common myths surrounding Down syndrome, prenatal screening and selection, so you will never be lost for words again. By Renate Lindeman Fact: Screening negatively affects the lives of people currently
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Myth 2: Screening and selection for Down syndrome is a woman’s right and a free choice

Saving Down syndrome is proud to bring you a series of articles debunking the 4 most common myths surrounding Down syndrome, prenatal screening and selection, so you will never be lost for words again. By Renate Lindeman Lakshmi may look young but when she speaks it is with a lot of e
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Myth 1. Down syndrome is a serious condition that causes suffering

      Saving Down syndrome is proud to bring you a series of articles debunking the 4 most common myths surrounding Down syndrome, prenatal screening and selection, so you will never be lost for words again. By Renate Lindeman An inconvenient truth: people with Down syn
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Prenatal selection hurts too

  By Renate Lindeman, the spokesperson for Dutch parent group Downpride’ Yesterday, the picture of a young boy with Down syndrome, tethered to his bed, went viral on the internet. The picture above was taken in 2006 during MDRI’s investigation of Serbian institutions. In 20
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I am a woman and a mother, not an incubator of societal preferred descendants

By Renate Lindeman, the spokesperson for Dutch parent group Downpride‘ Academics call for non-invasive prenatal test (NIPT) carried out at about 10 weeks to be made more widely available’, the Sydney Morning Herald reports. This test can, with reasonable accuracy, detect D
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Down syndrome: it’s not the end of the world

The other day I was catching up on blog reading, and one that popped up in my Reader was written by a pregnant woman who recently had her first trimester scan. Her baby had an elevated nuchal translucency measurement (involving the skin on the back of the neck). It caught my eye becau
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“Inside and Outside”

Wyn Evans of “Musings of a Proud Dad : beating Downs barriers” shares an article that was recently published in the Cardiff Times in Wales. As I write these words the two biggest news stories are Baby Gammy and The Yazidis. At present, the facts of the Baby Gammy story are disputed. B
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Human Rights Commission to address prenatal discrimination

New Zealand Disability Rights Commissioner Paul Gibson   In a world first, Saving Downs has secured a commitment from the New Zealand Human Rights Commission (HRC) to address prenatal discrimination against the Down syndrome and wider disability communities. The HRC has agreed to
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How much is your child worth?

Do you have a loved one with Down syndrome? Have you ever wondered how much they are worth? $74,768.91 Give or take a bit in kiwi dollars – that’s 38,000 British Pounds at today’s exchange rate. That’s according to this report for the New Zealand National Screening Unit (NSU) th
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