Tag

Down syndrome

I am a woman and a mother, not an incubator of societal preferred descendants

By Renate Lindeman, the spokesperson for Dutch parent group Downpride‘ Academics call for non-invasive prenatal test (NIPT) carried out at about 10 weeks to be made more widely available’, the Sydney Morning Herald reports. This test can, with reasonable accuracy, detect D
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Down syndrome: it’s not the end of the world

The other day I was catching up on blog reading, and one that popped up in my Reader was written by a pregnant woman who recently had her first trimester scan. Her baby had an elevated nuchal translucency measurement (involving the skin on the back of the neck). It caught my eye becau
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Saving baby Leo

I first heard about baby Leo and his dad Samuel Forest a couple of days before it blew up big on social media. In case you missed it, Samuel is bringing his son home to New Zealand after his wife abandoned them at birth in Armenia. Samuel had contacted me saying that he urgently neede
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A celebration of Father’s Day

Mike Sullivan bio
    It is Father’s Day, on Sunday the 7th of September in New Zealand and Australia. To celebrate, the New Zealand based Down syndrome advocacy group Saving Downs along with their friends the Jérôme Lejeune Foundation have launched a video called “My Papa”. The video is a li
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Our letter to Richard Dawkins – we will stay in the love thanks

Our open letter to Richard Dawkins from our founder Mike Sullivan (pictured above with his daughter Rebecca). Dear Richard Dawkins, Yesterday you chose to publicly judge the worth of people with Down syndrome, tweeting: “Abort it and try again. It would be immoral to bring it in
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“Inside and Outside”

Wyn Evans of “Musings of a Proud Dad : beating Downs barriers” shares an article that was recently published in the Cardiff Times in Wales. As I write these words the two biggest news stories are Baby Gammy and The Yazidis. At present, the facts of the Baby Gammy story are disputed. B
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Press Release: Human Rights Commission to prioritise Down syndrome discrimination

  In light of the huge international interest around the surrogacy case involving baby Gammy and the father’s admission that he would have asked the surrogate mother to terminate her pregnancy if he’d known their son had Down syndrome, it is a significant development that in a wo
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Human Rights Commission to address prenatal discrimination

New Zealand Disability Rights Commissioner Paul Gibson   In a world first, Saving Downs has secured a commitment from the New Zealand Human Rights Commission (HRC) to address prenatal discrimination against the Down syndrome and wider disability communities. The HRC has agreed to
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Reasons to Smile: 100 Life Journeys

Today we have a guest blog by Anna’s Mom: How a Mother’s path leads to an exciting new book idea. I am Anna’s Mom. My daughter is twenty-four years old and was born with Down syndrome. When her friends see me they say, “Hi, Anna’s Mom!” My identity had become synonymous wi
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How much is your child worth?

Do you have a loved one with Down syndrome? Have you ever wondered how much they are worth? $74,768.91 Give or take a bit in kiwi dollars – that’s 38,000 British Pounds at today’s exchange rate. That’s according to this report for the New Zealand National Screening Unit (NSU) th
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